Tuesday, May 08, 2007

A Behaviorist's Utopia

Okay, let's admit that there are days when our kids have behavioral issues. Even on their best days they are one "sensory attack" from having problems. That is the nature of their disability. But to understand what provokes their behaviors you have to be a mind reader. Even if you watch them like a hawk you are bound to miss that critical moment that starts the meltdown.

Another blogger friend is in the midst of dealing with behavior issues. Her son is a good boy but he is acting out at school. The school just keeps removing him from the room. She gets a nice little slip saying what he did wrong but no explanation about why he acting up? Ultimately, he is doing fine at home. Definitely, not so fine at school. So what is setting him off? Is it a peer? Is it something with the teacher? Is it because of communication issues? Is it a compulsive behavior? Is it due to escape or avoidance? Is it attention seeking? How is she to know? She isn't there! The only people who can know are in the classroom and they aren't figuring it out.

Truthfully, she is in the midst of what I fear happening for us next year. I worry about sensory overload and a teacher that doesn't know how to help JP regulate. I worry about a teacher (like we had 2 years ago) that doesn't get autism and assumes that his behaviors are him being bad rather than him trying to cope. I fear a teacher that doesn't realize that we have to help him cope with these situations and learn how to react appropriately. I fear a teacher that has such low expectations that she assumes he can't learn how to react in that environment. I fear a school district that thinks it is easier to remove him than to roll up their sleeves and figure out what he needs in order to succeed.

Well, I was trying to urge this mom to push for a behavioral assessment. I think they have gone down the path and she seems in the know. I think she is at her wits end. But her situation has made me think back to this awesome presentation I heard last month at our State Autism Conference. So instead of leaving the "comment from hell" on her site I just decided to throw a blog posting out here.

The presenter was James Ball. He is a board certified Behavior Analyst and is a private consultant working with children on the autism spectrum. He is from New Jersey. He was a fascinating speaker and I have to admit that I wasn't that gung ho about sitting through an ABA presentation. I am not an ABA fan in its strictest sense. I didn't have high expectations.

But I was thoroughly surprised with his presentation. He was a very good speaker. Truthfully, what surprised me most was that he seemed to mirror my thoughts toward therapy for our children. He expressed that we need to adjust the therapy so that it works for our child! Most ABA types have the reputation of declaring it to be ABA or the highway! He urged us to recognize that the premise of ABA and discrete trials can be done in any context. On the floor while playing with their train set or in the shopping cart at Walmart. ABA does not have to be about a sterile table environment. It is about breaking the task down and teaching it. It is about understanding the behavior and helping improve the appropriateness of it.

As a side note, I also need to share a jaw dropping experience. He was talking about behaviors and behavioral assessments and giving all the "mainstream behaviorist" talk when all of a sudden he said something that blew me away! "When you have a child exhibiting behaviors you need to make sure there aren't any medical issues at play. Kids get out of balance with yeast issues or urinary tract infections and they might very well be in pain. It does them no good to try to "train" them to behave if you don't first help them get rid of the pain!" He said that 3 years ago he would have blown off biomedicals as hocus pocus but he has seen it transform a child enough times to make a believer of him. Now he went on to explain that biomedicals don't cure the child but it makes them more receptive to the learning environment and of course they need done through a physician. I didn't go to this presentation looking for validation that we are doing the right things but I left feeling at peace with our diverse therapy options!

Back on track to my discussion. He spoke about a product called, B.I. Capture. This looked amazing. It is still in the pilot phase (I believe) but I want it in my schools...now! Here is a link to a news story that summarized it pretty well.

http://www.talkautism.com/Components/Video/Video.aspx?v=82

I know that our teachers are overwhelmed with a room full of kids. They can't see every thing that transpires in the classroom. And expecting them to answer why our children act out is a lot like asking them to read tea leaves. However, this application allows them to click a button at the time of the event and the TiVo camera in the room captures the moments preceding and following the outburst. The data is then sent of to a behavioral specialist who can then look at the entire scenario and make a determination as to what may have caused it. Then they can formulate a plan to fix the situation and help the child!

I think this is huge! Like I said, I want it in our classroom. Please let me know if anyone out there is using this product! I imagine it'll be used in those autism schools where the professionals already "understand" autism. I just think it would be SO INCREDIBLY helpful for those of us out here in schools where are teachers are not autism experts. This would make it so much easier for our schools to seek "professional" help rather than try to wing it themselves. I can only imagine how much our kids would benefit!

7 comments:

gretchen said...

Wow! The Tivo thing sounds perfect! Henry's teacher has been wanting to videotape him in order to figure out what sets off his "tantrums". I'll have to ask her if she's heard about this...

kristen spina said...

Acting out in school, fine at home. Sounds familiar. I often say if it weren't for school, we'd be good to go.

I'm no expert, but I think sometimes school is just demanding and hard, and home is safe and less hard. With my son, I've always likened it to the square peg in the round hole theory. School requires a certain amount of "fitting in" and for some kids, that can be pretty stressful and damn near impossible.

I think we need to demand more of our schools and our teachers and never stop trying to figure out ways to work together in the best interests of our children.

KAL said...

Wow, that's pretty cool. Leave it to TiVo to come up with a camera (I love TiVo :) I'm really looking forward to our visit with the metabolic specialist this week, hoping it will lead to some biomedical treatment options. The more I watch J, the more I think there is something going on in his body.

Club 166 said...

I would like to see a system where the last 10 hours could be captured on a rolling basis (so the whole day would be captured-it wouldn't take an inordinate amount of storage to do this).

Then when an incident occurred the teacher could hit the clicker and it would be flagged.

Of equal (and perhaps more) importance, when there was a behavioral problem that led to a chile being disciplined, the camera would serve as a neutral observer that would record a record that could be reviewed by parents and others.

Mom without a manual said...

Club166, that is exactly what this does. It is retrieving the data at all times but only preserving the segments where there was an incident. Since it is Tivo, there isn't the excessive costs of continual taping.

The teacher has to click a button and then the 10 minutes before and 10 minutes after are then preserved. Ideally this is sent to a impartial behaviorist who wouldn't even have to be part of the school system.

This removes the bias of the teacher and the parents. The video segment speaks for itself. Even if the school analyzes the video inhouse they would be able to show the parents exactly what transpired.

This was presented as a huge asset for the schools. The would now have "visual data" for legal reasons as well as it being a much more effective way to analyze the behavior.

The test group initially resented it as a "big brother" type tool but came to love it. It saved time for them documenting events and was much more effective!

Mom without a manual said...

KAL,

Good luck at the specialist!

Kristen and Gretchen,

Isn't it crazy when you see amazing tools out there yet our schools are still holding on tightly to the stone age. I think it would take a lawsuit or a big threat of one where the school felt at risk before they would embrace something like this.

Personally, I think they consider our kids "behaviors" as a way to move them out of the mainstream. Why extinguish the behaviors if it means they then have to continue to foot the bill for the extra staffing for inclusion. If they can move them into a special ed classroom they can reduce their staffing costs.

Again me being cynical.

WarriorMom said...

I sent an e-mail message to my son's teacher with the link to the news story.

And it's great that the ABA presenter now supports biomedicals!